When I was pregnant with our 2nd child, our world changed overnight. In one month, our 2-year-old son, Chance, was diagnosed with congenital heart defects and the baby I was carrying was diagnosed with major congenital heart defects. Though I had heart surgery when I was a child, I was always told by doctors I would be able to have children and that the heart defect I had (Atrial Septal Defect) was not genetic.  Jon and I even met with genetic counselors before trying to have children to discuss the possibility of passing this on...the answer at the time was that it was not genetic.

Together, we have had over 16 heart surgeries and still require more! All 3 of us have pacemakers that keep our hearts beating regularly. We are the "Three Fixed Hearts!"

Since then, we've learned a lot more about our condition and have been extensively studied by physicans and genetic specialists. They actually discovered the genetic defect causing our hearts to develop and function wrong. 

Moving forward: Now, many physicians and researchers are using OUR DNA in their studies. Our DNA will provide medical answers, helping many, many families in the future.

Along with the help of Jon (husband & daddy with the "normal" heart), medical professionals, hospitals and of course, God, we are alive today to tell our story. 

Even with brushes with death and what feels like insurmountable challenges, we strive to find joy in each day and to find the path that leads us to our most healthy, happy and longest lives.

We volunteer as much as we can and give back to the organizations that have helped us. One day, we will start our own 501(c)3 to help families struggling with CHD and to fund research.
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